Wednesday, October 26, 2011

Heart broken

I've been putting off writing this, but I need to get it out.

We found out what's going on with my mom. She has a disease called Pulmonary Fibrosis. She also had pneumonia, but this is the much more serious issue. Pulmonary Fibrosis is terminal, meaning it will not go away. The damage to her lungs can't be reversed or halted. It's a progressive disease that causes scarring on healthy lung tissue. The result is difficulty breathing, and over time, it gets worse and worse.

We are still trying to figure out how rapidly this disease is progressing. It could be that we have several more good years with her. She will have CT scans every 3 months to see what's happening. There is a chance they will do an open lung biopsy to do a definitive diagnosis. But I don't want her to go through that unless it is absolutely necessary. She had some complications during her broncosopy last month, and that was scary enough.

There isn't much we can do right now except wait. I'm grateful mom is going to meet the new baby in DC this week. I think it will do her a lot of good to get out of the house and meet her new grandson. I almost wish I had gone with her... but there will be more time.

She goes back to the dr in early December for a follow up appointment and to receive the results of the CT scan (that's in late November). Please pray that we'll all get through the waiting as best we can, and that we can lean on one another and God to walk this path.

I have to say, this is not what I wanted. I need my mom.

3 comments:

Jules said...

Oh, Andrea. I hate HATE this for your family. Of course you need your mom. I don't think we ever really stop feeling that way. Praying for comfort for you all, for strength and energy for your mother, for peace in the mist of confusion and fear. Most of all, sending lots of love.

erin said...

I am heartbroken for you, Andrea. I feel the same way about my mom. Sometimes I feel like I need her now more than I did when I was younger. I am so saddened to hear this news and will pray for peace and comfort for her and for your family.

Amy@TheCircusMcGurkus.blogspot.com said...

There are no words. I am so sorry for you and your family. Please let me know if there is anything I can do for you,

Love you girl and I will be praying for you and your family.